Review: How the Internet is being used to hijack medical science for fear and profit

Review: How the Internet is being used to hijack medical science for fear and profit
Scientific American
By Dr. Valerie Jones
February 23, 2011

 
In his new book, Tabloid Medicine: How The Internet Is Being Used to Hijack Medical Science for Fear and Profit, Robert Goldberg, PhD, explains why the Internet is a double-edged sword when it comes to health information. On the one hand, the Web can empower people with quality medical information that can help them make informed decisions. On the other hand, the Web is an unfiltered breeding ground for urban legends, fear-mongering and snake oil salesmen.
 
Goldberg uses case studies to expose the sinister side of health misinformation. Perhaps the most compelling example of a medical "manufactroversy" (defined as a manufactured controversy that is motivated by profit or extreme ideology to intentionally create public confusion about an issue that is not in dispute) is the anti-vaccine movement. Thanks to the efforts of corrupt scientists, personal injury lawyers, self-proclaimed medical experts, and Hollywood starlets, a false link between vaccines and autism has been promoted on a global scale via the Internet. The resulting panic, legal feeding frenzy, money-making alternative medicine sales, and reduction in childhood vaccination rates (causing countless preventable deaths), are sickening and tragic.
 
As Goldberg continues to explore the hyperbole behind specific "health threats," a fascinating pattern emerges. Behind the most powerful manufactroversies, lies a predictable formula: first, a new problem is generated by redefining terminology.

For example, an autism "epidemic" suddenly exists when a wide range of childhood mental health diagnoses are all reclassified as part of an autism spectrum. The reclassification creates the appearance of a surge in autism cases, and that sets the stage for cause-seeking.
 
Second, "instant experts" immediately proclaim that they have special insight into the cause. They enjoy the authority and attention that their unique "expertise" brings them and begin to position themselves as a "little guy" crusader against injustice. They also are likely to spin conspiracy theories about government cover-ups or pharmaceutical malfeasance to make their case more appealing to the media. In many cases the experts have a financial incentive in promoting their point of view (they sell treatments or promote their books, for example).
 
Third, because mainstream media craves David and Goliath stories and always wants to be the first to break news, they often report the information without thorough fact-checking. This results in the phenomenon of "Tabloid Medicine."

Fourth, once the news has been reported by a mainstream media outlet, the general population assumes it’s credible, and a groundswell of fear drives online conversation on blogs, websites, and social media platforms.

And finally, celebrities take up the cause while personal injury lawyers feast on frightened consumers who now believe that they are victims of harm perpetrated on them by the "medical industrial complex." Meanwhile flustered government health officials have no scientific evidence of harm, but cannot prove a lack of association without further research (and that takes time). So they offer what seems like tepid reassurances, which are perceived by some to be tantamount to an admission of guilt.
 
And that’s how a lie becomes an urban legend. Perception is nine tenths of reality.
 
How is it that we fall for manufactroversies again and again? Goldberg argues that the answer may be found in our own psyches.
 

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